I've not settled in well. Into this lifestyle. I'm not used to being homebound. On a short leash. Going from the couch to my bed to the couch again. I've been angry. And depressed. Distracted. Unable to concentrate and enjoy things I used to. Like reading, blogging, writing, crossword puzzles, facebooking and the sort. I just don't find joy in them anymore. So I've been watching TV and too much of it. And it isn't pretty. Any of it really. It gets old really fast.
So there is no resting on hospice. You have a revolving door. They start calling you at 830am to make appointments and then a steady stream of hospice nurses, infusion nurses, chaplains, social workers, physical therapists, bath aides etc. visit you throughout the day and week. It gets quite tiring. Especially if you're not feeling well. Sleeping through the night is impossible, hooked up to TPN, my liquid diet, from 6pm until 1030am the next morning. Infused daily through my port in my chest. On top of being hooked up to the NG TUBE suction.
So that's my life lately. Exciting. NOT.