I apologize for my disappearance. Both my PC and my laptop have been down, and updating my blog from my PDA phone seems impossible and so cumbersome. I am making it a goal to post at least once a day as long as I'm feeling well to keep you all up to date and in the know with my treatment and life! I know a lot of you are following me on Facebook (Shauna Berglund Immel), but I also know a lot of you are not in that world yet. So I apologize for keeping you in the dark the last several months.
I am hanging in there. My numbers have creeped back up. CA125 normal is 35 or below. Last blood draw (last week) was up to 155. My oncologist was giving me a month of treatment (FOLFOX = oxciliplatin, avastin and 5FU in the pump) to see if it would come back down. I meet with her on Monday and have my next round. I'm going every other week now. It gets very old!
I've lost 40# since my trip to the Galapagos Islands (May 7). My digestive system is so messed up and I haven't been able to eat or drink much and keeping it down is also a chore at times. Luckily I had it to lose and more, but being a cancer/chemo patient, losing weight isn"t always a good thing (or so my doctor tells me!). I also think that when they stopped the steroids (had a bad episode where they ODed me on Steroids and I went into drug induced psychosis?), it caused me to let go of some of the bloated look that goes along with them.
I've been living life large, and in full color during my good weeks and hanging low during the bad chemo weeks. But I'm grateful for the good weeks and the perspective I have gained on priorities, etc through this journey.
All of my photos are on my pc, which is down at the moment, so I'm going to have trouble posting photos for a bit. Please be patient with me as I ease back into this blogging addiction! I must say I have missed it and you all!
Thanks for being there for me and checking in on me and being so patient! It's good to be back among the posting!